Stories

Browse stories submitted by other patients and carers below.

Do you have a story you’d like to share? Submit your story here.

We encourage you to check out our stories FAQ to understand our publishing process, and get inspiration from our story prompts.

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Results 1 - 10 of 23

Story

Cathy’s Story – Living as a Long Term Survivor

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Cathy Kennedy shares her story as a long-term brain tumour survivor, living in regional Victoria with her husband and two children. Cathy was diagnosed with an Anaplastic Oligodendroglioma over 20 years ago, and has had 3 surgeries, two lots of chemotherapy and radiation as part of her treatment.
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Story

Living my life with an astrocytoma.

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Julia is a graphic designer living in regional Victoria with her husband and two young children. She was diagnosed with a brain tumour 8 years ago in 2017 (initially a diffuse astrocytoma grade 2 that progressed to a higher grade). Julia shares her experience of being suddenly diagnosed with a brain tumour, what her tumour treatment involved, as…
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Story

Cass’s Story

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At the time of writing, Cass was a 42-year-old woman living in the Australian Capital Territory with her partner and two young children. She was diagnosed with a brain tumour 4 years ago. Cass shares her experience of being suddenly diagnosed with a brain tumour, and how she has come to terms with it and found ways to make the most of the time she…
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Story

Getting Busy Living!

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Craig is a happily married father of 4 children, back in Victoria after living in Hungary. At the time of his GBM diagnosis, Craig was a very fit and healthy 47yr old, a Regional Business Director for Eastern Europe and the Middle East for a successful company, living life to the fullest. Craig shares his experience of being diagnosed while…
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Story

An unexpected journey….with beautiful gifts on the way.

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Nano is a farmer, living in regional NSW. She was diagnosed with anaplastic astrocytoma grade 3 in 2023. Nano shares her experience of being unexpectedly diagnosed with a brain tumour, what her initial tumour treatment involved, as well as some of the services and techniques she uses to tackle everything life throws at her with positivity.
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Story

Our story of love & hope.

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Kirsty lives in regional Victoria with her husband Craig and three beautiful young adult teens. In 2023 Craig was diagnosed with stage 4 Giant Cell Glioblastoma. Kirsty shares how she and her family have been coping with this life-changing diagnosis, surrounded by the love and support of their family and friends.
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Story Content Warning: Death / Dying

My views and experience of Palliative Care.

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MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. Using a Q+A style, MJ tells us about how he views palliative and supportive care in his brain tumour expedition.
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Story Content Warning: Death / Dying

Important financial and legal ‘life documentation’ to consider after a brain cancer diagnosis.

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MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. MJ tells us about some of the ‘life documentation’ that it is important to think about when you have been diagnosed with brain cancer or a brain tumour.
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We’ve curated lots of information we think might be useful to you and your loved ones. If you think the content we’ve curated isn’t informative or the link is broken, let us know at BT-online@unimelb.edu.au.

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