Stories (Page 2) | Brain Tumours Online

Story

Amanda’s Story. Part 2: The Surgery. (Video)

Amanda shares her experience of neurosurgery as a treatment for her brain tumour. She talks very candidly on camera about some of her fears before the surgery, what the experience of having a craniotomy was like, how she helped prepare herself and reassure her young children before the surgery, and how she felt after the surgery was done.

Story Content Warning: Death / Dying

Bethany’s Story. Part 2: Journey’s end. (Video)

Bethany candidly shares her personal experience as a carer in the final weeks of her husband's life, the cherished memories that she thinks back on, as well as her experience of home-based palliative care, and the importance of community, family and support networks to help get through the hardest time of all.

Story

Michele’s Story – Vlog series (Cure Brain Cancer Foundation)

Michele's series of video blogs were not created as part of Brain Tumours Online, but are available to watch on the Cure Brain Cancer Foundation's YouTube Channel. Michele navigates the complexities of glioblastoma multiforme (GBM) with unwavering determination, offering poignant insights into the realities of brain cancer while…

Story

Coping with Vision Loss: Q&A with a patient living with a high-grade glioma.

MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. Using a Q+A style, MJ tells us about how he sees his own experience of left peripheral vision loss.

Story

Brain cancer is an expedition not a journey.

MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. Using a Q+A style, MJ tells us about how he sees his own brain cancer "journey" or "expedition".

Story

A patient’s perspective on using Temozolomide.

At the time of writing, MJ was a 46 year old otherwise healthy man living with an aggressive and non-curable type of brain cancer. This is his experience of taking Temozolomide, a common oral chemotherapy drug for treating brain cancers.

Story

Radiation as part of my brain cancer treatment.

MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. MJ tells us about how he sees his own experience of radiation treatment.

Story

Neurosurgery as part of my brain cancer treatment.

MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. Using a Q+A style, MJ tells us about his experience of neurosurgery as part of his brain cancer treatment.

Story

Dealing with regular MRI scans and ‘scanxiety’.

MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. MJ tells us about how he sees his own experience of his first and subsequent MRIs.

Story

A patient’s experience of balancing life and work after a diagnosis of high grade glioma.

MJ is a 46-year-old man who was diagnosed with a high-grade glioma in 2019. MJ tells us about how he sees balancing living with his brain cancer and the financial and other implications of giving up work.

Stories

Amanda’s Story. Part 2: The Surgery. (Video)

Bethany’s Story. Part 2: Journey’s end. (Video)

Michele’s Story – Vlog series (Cure Brain Cancer Foundation)

Coping with Vision Loss: Q&A with a patient living with a high-grade glioma.

Brain cancer is an expedition not a journey.

A patient’s perspective on using Temozolomide.

Radiation as part of my brain cancer treatment.

Neurosurgery as part of my brain cancer treatment.

Dealing with regular MRI scans and ‘scanxiety’.

A patient’s experience of balancing life and work after a diagnosis of high grade glioma.

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