Diagnosis

Being diagnosed with a brain tumour can be a sudden, unexpected and overwhelming experience. These resources help explain what a brain tumour is, how they are diagnosed, some of the symptoms that you may be experiencing, and the common tests and treatments you may be recommended.

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Treatment of Adult Central Nervous System Tumours, including Brain Tumours (National Cancer Institute, USA)

Treatment of Adult Central Nervous System Tumours, including Brain Tumours (National Cancer Institute, USA)
The National Cancer Institute is part of the National Institutes of Health (NIH) in the United States of America. They have a guide for patients that includes general information about brain tumours, different types of brain tumours, a description of the types of common treatments for brain tumours (including surgery, radiation therapy…
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Understanding Brain Tumours (Cancer Council Australia PDF Booklet)

Understanding Brain Tumours (Cancer Council Australia PDF Booklet)
This is a 72-page comprehensive PDF booklet produced by Cancer Council Australia as a guide for people with brain tumours, their families, and friends. It is a good starting point for learning about brain tumours. It includes info on types of brain tumours, symptoms, how brain tumours are diagnosed, what treatments and support services are…
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Brain Cancer (Australian Government / Cancer Australia)

Brain Cancer (Australian Government / Cancer Australia)
The Cancer Australia website provides some statistics about brain cancer, including the number of new cases, deaths, survival rates, and overall prevalence in Australia. The information on this website is quite brief, but it is Australian based.
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Animations Explaining Brain Tumours (The Brain Tumour Charity – UK)

Animations Explaining Brain Tumours (The Brain Tumour Charity – UK)
These short video animations from the UK explain brain tumours, scans, and common treatments like chemotherapy, surgery, radiotherapy, steroids. The videos were designed for children, but people of all ages may find it informative to watch them.
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Survivorship Diary (Mark Hughes Foundation – available as a PDF or a physical diary)

Survivorship Diary (Mark Hughes Foundation – available as a PDF or a physical diary)
This practical free resource is designed to assist patients diagnosed with a brain tumour to keep track of appointments, medications and important questions to ask specialists. The Survivorship Diary is now published and distributed by the Mark Hughes Foundation in loving memory of Cass Bennett.
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Signs and Symptoms of Adult Brain Tumours (American Cancer Society)

Signs and Symptoms of Adult Brain Tumours (American Cancer Society)
The American Cancer Society website has some information on general signs and symptoms that can be caused by a brain or spinal cord tumour. It also includes some examples of symptoms that can be caused by a tumour growing in a particular location of the brain, for example, tumors in the back part of the cerebrum, or around the pituitary gland, the…
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High-Grade Glioma – Guide to Best Cancer Care in Australia (multiple languages)

High-Grade Glioma – Guide to Best Cancer Care in Australia (multiple languages)
This Australian resource can help to guide you and your family through the experience of being diagnosed with high-grade glioma. It includes information on what tests to expect, timeframes for tests and referrals to specialists, diagnosis and treatment options, living with advanced cancer and suggested questions to ask your health care team to help…
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Astrocytomas (Rare Cancers Australia)

Astrocytomas (Rare Cancers Australia)
The Rare Cancers Australia website provides information on Astrocytomas, including different types of astrocytomas (including glioblastoma, diffuse midline glioma, anaplastic astrocytoma and other types) how they are graded, early symptoms, diagnostic tests and some treatment options.
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Biomarker tests for Brain Tumours (The Brain Tumour Charity – UK)

Biomarker tests for Brain Tumours (The Brain Tumour Charity – UK)
If you have a brain tumour, a biomarker test may be used to look at the genes associated with your type of tumour. This webpage from the UK gives a great overview of what biomarkers are, biomarkers for brain tumour diagnosis, biomarkers for predicting responses to brain tumour treatment and prognosis, and some of the specific biomarker names you may…
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We’ve curated lots of information we think might be useful to you and your loved ones. If you think the content we’ve curated isn’t informative or the link is broken, let us know at BT-online@unimelb.edu.au.

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