Supportive + Palliative Care

Palliative care is a supportive care service that can improve the quality of life of people living with a brain tumour, and support their families. While it is often provided to people with advanced cancer in the final stages of life, it can be used to provide support at home at ANY stage when cancer is active, alongside other treatments like surgery, radiation therapy and chemo. These resources explain what sorts of services can be provided by a palliative care team, and how to access them.

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Understanding Palliative Care (Cancer Council PDF Booklet)

Understanding Palliative Care (Cancer Council PDF Booklet)
The Cancer Council have put together this 56-page PDF guide for people with cancer, their families and friends to help you understand more about palliative care (sometimes also called 'Supportive Care'). It provides general information that may answer some of your questions about these services and help you think about what to ask your…
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Treatment of Adult Central Nervous System Tumours, including Brain Tumours (National Cancer Institute, USA)

Treatment of Adult Central Nervous System Tumours, including Brain Tumours (National Cancer Institute, USA)
The National Cancer Institute is part of the National Institutes of Health (NIH) in the United States of America. They have a guide for patients that includes general information about brain tumours, different types of brain tumours, a description of the types of common treatments for brain tumours (including surgery, radiation therapy…
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CarerHelp website

CarerHelp website
CarerHelp is an Australian website for carers who need information and resources to help them feel informed and prepared for caring for someone who is seriously ill. It also includes information to support carers when death is a possibility and for when death is near. CarerHelp has information for everyone including carers who are Aboriginal or…
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Palliative Care Advice Service (available to Victorians)

Palliative Care Advice Service (available to Victorians)
The Palliative Care Advice Service is a free phone service available to Victorians. They offer free, confidential advice for anyone who needs information about a life-limiting illness, palliative or end-of-life care.
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Busting Palliative Care Myths (Short videos by Palliative Care Australia)

Busting Palliative Care Myths (Short videos by Palliative Care Australia)
Palliative Care Australia has made a short video series to combat some of the common myths associated with palliative care, including: Palliative care is only available in your last few days, You can only receive palliative care in hospital, Palliative care means my doctor has given up on me.
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Providing Effective Care at Home and at the End of Life – a PDF Handbook for Patients with a Terminal Brain Tumour and their Family Caregivers (UCSF).

Providing Effective Care at Home and at the End of Life – a PDF Handbook for Patients with a Terminal Brain Tumour and their Family Caregivers (UCSF).
The goal of this handbook is to provide an overview of what a patient and their family and caregivers may expect when facing a progressive, life-threatening brain tumour. This handbook is specifically focused on providing effective care at home and at the end of life. The handbook is produced by the University of California San Francisco (UCSF) and…
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Gather My Crew (An Australian App to Help Request and Manage Support From Your Friends)

Gather My Crew (An Australian App to Help Request and Manage Support From Your Friends)
Asking for help isn't always easy. We are often reluctant to reach out, even when we need it most. The "Gather My Crew" app is a way to use technology to coordinate with friends and family, to turn offers of ‘let me know what I can do’ into action that meets your unique needs. You can use the app to request help for specific…
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Survivorship Diary (Mark Hughes Foundation – available as a PDF or a physical diary)

Survivorship Diary (Mark Hughes Foundation – available as a PDF or a physical diary)
This practical free resource is designed to assist patients diagnosed with a brain tumour to keep track of appointments, medications and important questions to ask specialists. The Survivorship Diary is now published and distributed by the Mark Hughes Foundation in loving memory of Cass Bennett.
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MediStays (Australian Accomodation Service to Support Hospital Visits or Disability-Related Stays)

MediStays (Australian Accomodation Service to Support Hospital Visits or Disability-Related Stays)
MediStays is a nationwide service connecting Australians and their families with accommodation options to support a hospital visit or disability-related stay. Whether you’re a patient on your way to hospital, a friend or family member paying a visit, a person with a disability looking for accommodation as part of your NDIS plan, or a health worker…
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General Cancer Treatment Information (Cancer Institute NSW)

General Cancer Treatment Information (Cancer Institute NSW)
The Cancer Institute NSW website provides general information to help understand cancer treatments, including information on common treatments that are used in Australia to treat brain tumours: surgery, radiotherapy, chemotherapy, palliative care. This information, although NSW-based, includes information that would be relevant across Australia.
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We’ve curated lots of information we think might be useful to you and your loved ones. If you think the content we’ve curated isn’t informative or the link is broken, let us know at BT-online@unimelb.edu.au.

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