Advocacy Organisations

There are many foundations, charities, and advocacy organisations offering supports and resources (often for free) that may help you. Some are specifically for people with a brain tumour (e.g. Brain Tumour Alliance Australia, Peace of Mind Foundation), or for carers (CarerHelp, Carers Australia), some are for anyone affected by cancer (Cancer Council Australia), others are focused on a specific condition (for example epilepsy/seizures or aphasia) or a tumour type or community.

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Link Content Warning: Death / Dying

CarerHelp website

CarerHelp website
CarerHelp is an Australian website for carers who need information and resources to help them feel informed and prepared for caring for someone who is seriously ill. It also includes information to support carers when death is a possibility and for when death is near. CarerHelp has information for everyone including carers who are Aboriginal or…
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Epilepsy Foundation

Epilepsy Foundation
The Epilepsy Foundation delivers support programs for people and families living with epilepsy in Australia. This includes information, resources, and training tailored for individuals, families, schools, workplaces and community settings. The website also includes seizure first aid, epilepsy and seizure management tools, and practical resources for…
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Canteen Australia

Canteen Australia
Canteen is an Australian not-for-profit that provides free and tailored support to young people (aged 12-25) who are impacted by cancer. Whether they are dealing with their own diagnosis, a close family member's cancer, or death of a loved one, Canteen can provide: free counselling and individual support, connection to peers in similar…
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Acoustic Neuroma Association Australia (ANAA) website.

Acoustic Neuroma Association Australia (ANAA) website.
Australian-based online portal for people affected by acoustic neuroma (also called Vestibular Schwannoma), providing information, resources and support for patients and carers. The association has support officers in each Australian state and holds online and in-person meetings. You can become a member and receive quarterly newsletters as well as…
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Cancer Council Australia

Cancer Council Australia
Cancer Council Australia offers a wide range of information, support and services to help all Australians affected by cancer. You can browse by topic, community, or location to find information relevant to you. There is also a free, confidential telephone service run by Cancer Councils in each state and territory. If you have a question about…
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Cure Brain Cancer Foundation

Cure Brain Cancer Foundation
Cure Brain Cancer Foundation is a leading organisation for brain cancer research, advocacy and awareness in Australia, with a mission to rapidly improve brain cancer survival and vision to ultimately find a cure for brain cancer. The Cure Brain Cancer Foundation website has a lot of useful information and supports available for both patients and…
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Brain Tumour Alliance Australia (BTAA)

Brain Tumour Alliance Australia (BTAA)
BTAA is an Australian not-for-profit organisation that supports patients with any brain tumour (neoplasm) affecting the central nervous system (CNS), which includes the meninges, brain, and spinal cord. The BTAA website has great resources for download, including a brochure "It's Okay to Ask" with questions for your healthcare team…
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We’ve curated lots of information we think might be useful to you and your loved ones. If you think the content we’ve curated isn’t informative or the link is broken, let us know at BT-online@unimelb.edu.au.

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