Palliative + End of Life Care

While Palliative Care can be provided at any stage of cancer alongside other treatments to improve quality of life, in this section we focus on resources for providing palliative care towards the End of Life for people with a terminal brain tumour and their families.

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Understanding Palliative Care (Cancer Council PDF Booklet)

Understanding Palliative Care (Cancer Council PDF Booklet)
The Cancer Council have put together this 56-page PDF guide for people with cancer, their families and friends to help you understand more about palliative care (sometimes also called 'Supportive Care'). It provides general information that may answer some of your questions about these services and help you think about what to ask your…
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Link Content Warning: Death / Dying

CarerHelp website

CarerHelp website
CarerHelp is an Australian website for carers who need information and resources to help them feel informed and prepared for caring for someone who is seriously ill. It also includes information to support carers when death is a possibility and for when death is near. CarerHelp has information for everyone including carers who are Aboriginal or…
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Palliative Care Advice Service (available to Victorians)

Palliative Care Advice Service (available to Victorians)
The Palliative Care Advice Service is a free phone service available to Victorians. They offer free, confidential advice for anyone who needs information about a life-limiting illness, palliative or end-of-life care.
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Busting Palliative Care Myths (Short videos by Palliative Care Australia)

Busting Palliative Care Myths (Short videos by Palliative Care Australia)
Palliative Care Australia has made a short video series to combat some of the common myths associated with palliative care, including: Palliative care is only available in your last few days, You can only receive palliative care in hospital, Palliative care means my doctor has given up on me.
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Link Content Warning: Death / Dying

Providing Effective Care at Home and at the End of Life – a PDF Handbook for Patients with a Terminal Brain Tumour and their Family Caregivers (UCSF).

Providing Effective Care at Home and at the End of Life – a PDF Handbook for Patients with a Terminal Brain Tumour and their Family Caregivers (UCSF).
The goal of this handbook is to provide an overview of what a patient and their family and caregivers may expect when facing a progressive, life-threatening brain tumour. This handbook is specifically focused on providing effective care at home and at the end of life. The handbook is produced by the University of California San Francisco (UCSF) and…
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Link Content Warning: Death / Dying

Podcast: The thing about advanced cancer (Cancer Council NSW)

Podcast: The thing about advanced cancer (Cancer Council NSW)
"The thing about advanced cancer" is an audio podcast series produced by Cancer Council NSW. Each 20-30 minute episode covers a different topic related to advanced cancer - some are more suited for patients, others for carers. Topics include: Treatment options for advanced cancer, the role of hope and purpose in advanced cancer, living…
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Link Content Warning: Death / Dying

Advance Care Planning (Advance Care Planning Australia)

Advance Care Planning (Advance Care Planning Australia)
Advance Care Planning is the process of planning for your future health care in case you were to become seriously ill or injured and are unable to communicate your preferences or make decisions. This can relate to the care you wish to receive at the end of your life. This website explains what Advance Care Planning is, and helps you create and…
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Palliative Care Australia (PCA) website

Palliative Care Australia (PCA) website
Palliative Care Australia (PCA) is the national peak body for palliative care. PCA's website provides lots of helpful information for patients, carers and health care professionals, including what is palliative care, how much does it cost, how and when to access it. There is also searchable directory for palliative care services across Australia.
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Link Content Warning: Death / Dying

Palliative Care and End of Life services (Victorian Government website)

Palliative Care and End of Life services (Victorian Government website)
The Victorian state government's Better Health Channel website provides information on palliative and end of life services available to people living in Victoria. End of life and palliative care services include help with daily tasks and access to a range of emotional, spiritual and mental health care options to suit your needs. Services also…
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Link Content Warning: Death / Dying

Facing End of Life (Cancer Council PDF Guide)

Facing End of Life (Cancer Council PDF Guide)
Cancer Council have a guide for people dying with cancer, their family and friends. The chapters in outline how you might feel knowing you are dying, what might happen physically, and how you can prepare for death. There is also information for carers, family and friends. This may be the first time you have read about end-of-life matters and it may…
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We’ve curated lots of information we think might be useful to you and your loved ones. If you think the content we’ve curated isn’t informative or the link is broken, let us know at BT-online@unimelb.edu.au.

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