Lifestyle Changes

Here you will find resources to help with managing changes to your lifestyle as you adjust to what your ‘new normal’ may look like, including changes to your ability to drive, making adjustments to return to work, travelling overseas, and seeking or accepting practical help.

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Educational Resources for Caregivers of Loved Ones with Brain Tumours (UCSF Brain Tumor Center)

Educational Resources for Caregivers of Loved Ones with Brain Tumours (UCSF Brain Tumor Center)
The University of California San Francisco (UCSF) has compiled educational resources for caregivers of loved ones with brain tumours, including caregiving handbooks and recorded webinars. While these are American resources, much of the information is relevant in Australia. Resources include: managing care at home, symptoms of brain tumours, side…
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Gather My Crew (An Australian App to Help Request and Manage Support From Your Friends)

Gather My Crew (An Australian App to Help Request and Manage Support From Your Friends)
Asking for help isn't always easy. We are often reluctant to reach out, even when we need it most. The "Gather My Crew" app is a way to use technology to coordinate with friends and family, to turn offers of ‘let me know what I can do’ into action that meets your unique needs. You can use the app to request help for specific…
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MediStays (Australian Accomodation Service to Support Hospital Visits or Disability-Related Stays)

MediStays (Australian Accomodation Service to Support Hospital Visits or Disability-Related Stays)
MediStays is a nationwide service connecting Australians and their families with accommodation options to support a hospital visit or disability-related stay. Whether you’re a patient on your way to hospital, a friend or family member paying a visit, a person with a disability looking for accommodation as part of your NDIS plan, or a health worker…
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Financial and Legal Support (Cancer Council Victoria)

Financial and Legal Support (Cancer Council Victoria)
Cancer Council Victoria provides information on financial and legal support that may be available to you if you are affected by cancer. This includes information on financial costs of living with cancer, advice on managing finances after a cancer diagnosis, and a free Financial Counselling Program available to Victorians affected by cancer. They…
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Cancer and Work – Information for Patients and Carers (Cancer Council Victoria)

Cancer and Work – Information for Patients and Carers (Cancer Council Victoria)
In many cases, a diagnosis of a brain tumour will affect a person’s work life. Caring responsibilities may also impact the ability of family or friends to work when balancing demands of work and caring. Cancer Council Victoria provide some general information that you may find helpful when making decisions about working during or after cancer…
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Cancer and Work – Resources to Help You Support an Employee or Colleague with Cancer (Cancer Council Victoria)

Cancer and Work – Resources to Help You Support an Employee or Colleague with Cancer (Cancer Council Victoria)
As an employer or colleague, it can be hard to know what to say, how to help or the best way to provide a supportive workplace for people affected by cancer. Workplaces are an important source of support, identity and purpose, and many people with cancer continue working. Others have to make changes or stop working, and carers may also have to make…
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Managing Seizures (Cancer Council NSW)

Managing Seizures (Cancer Council NSW)
A brain tumour or its treatment can sometimes cause seizures (also called fits or convulsions). This Cancer Council website explains different types of seizures, ways to prevent seizures, ways to help someone having a seizure, and information on anticonvulsant medicines. There is also a link to important information about driving with a brain tumour…
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VicRoads Medical Forms and Fact Sheets about Common Medical Conditions that Impact Driving (Victoria)

VicRoads Medical Forms and Fact Sheets about Common Medical Conditions that Impact Driving (Victoria)
Brain tumours, seizures, brain surgery and medicines (such as anticonvulsants and some pain medicines) can affect the skills needed to drive safely. If you have a long-term or permanent physical or mental condition that may affect your ability to drive, you have a legal obligation to notify VicRoads. The Vic Roads website includes fact sheets on…
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We’ve curated lots of information we think might be useful to you and your loved ones. If you think the content we’ve curated isn’t informative or the link is broken, let us know at BT-online@unimelb.edu.au.

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